This has been a HARD week, I am not going to lie. Poor mom....Sometimes I wonder about all the specialists, and all the drugs, and all the constant struggles to "cure" our failing bodies. As you remember, we saw the new neurologist last week and I left there soo hopeful that he had us on a new road that would bring not only seizure control, but practically no side effects as well. His passion and conviction on this drug was HUGE, and I certainly jumped on board with enthusiasm. After this week, I will be hard pressed to try anything new again, or at least for a while anyway. Mom has basically practically checked out. She either slept, or shuffled around in a DEEP and confused fog, unable to barely feed herself, carry on any sort of a conversation, or remember almost anything. She was unable to do much of anything for herself, which of course not only made my week MUCH MUCH more difficult, but I was also in a constant state of alarm that she might fall again, or hurt herself in some way. I never did get a hold of the neurologist. Yes, you heard me right...I never did. Thank God her new primary care doctor was right there helping however, so I have been able to talk to her a few times in addition to seeing her on Tues. We have taken some meds away, adding others at other times, and she has remained pretty much a mess. Soo today, we are eliminating the "new" drug altogether, and going back to the old one, and PRAYING there will be no break through seizures...sigh. AND! She wants me to take her back to the neurologist as soon as I can get an appointment, and see what his next course of action might be. Me? I think I would rather just throw in the towel on specialists and neurologists in particular, and just move along as best we can. But then I remember that last scary seizure she had and I know I will just have to gather strength again and "maybe" try something else. I guess I can at least say I am NOT looking forward to it. But I feel much better about mom being gone this week-end since she will NOT be on this new drug. I did get her into the shower today, and she is moving along MUCH better than yesterday so I trust me I am grateful for small progress. This whole season in my life has brought with it a MUCH bigger (if that was even possible) dependency on God, and a realization that without Him I truly can not do much at all.
I did get quite a bit of sewing done this week, and I am grateful for that. I have finished all my blankets, (with the exception for the rag quilt for my son's coming baby), and have a REALLY good start on most of the burp cloths (ALL cut out, half sewn) but I haven't taken any pictures of them yet. I will get to that sometime I imagine. I have a lot to do yet to get mom ready for the week-end, so I will end this now.
I thought you might like to read this message that my son posted on Facebook this morning. I was already looking forward to Sunday, but this gives me added excitement! Hope you all have a wonderful, restful, joyful week-end! Blessings to you all! Debbie
Is it even possible for children to know just how loved and valued they are by their parents? I'm sure my kids know that I love them, but to what extent? Do they know I feel as if my heart is beating in their chest? Do they know that their hurt is my hurt and their joy my joy? D o they know that there simply isn't anything I would not do for them? Now let me ask you a question. Do you realize that the love a parent has for their child only scratches the surface of the love that God has for you? Do you have any idea how loved and valued you are by Him? That's what we are going to be talking about this Sunday at Revive, we would be blessed to have you join us. In His love, Pastor James